Some days I grieve the losses that RA has caused my body and today is simply one of those days for me!
In the last few months RA has stolen from me:
~ My mobility! The ability to do
yoga, go to the gym and run & bike has been the most devastating as I have
been always a go-go type of gal!
~ My energy!
~ Some friendships
~ Independence
~ Social Life
~ The ability to sleep through the
night
~ The ability to drive at night
Oh, but just don’t think that RA
robbed me and ran off without leaving me some gifts like:
~ Daily pain
~ Swollen hands
and feet
~ Headaches
~ Weakness
~ Extreme
fatigue
~ Brain fog
~ Blurred vision
There is a
theory called “The Spoon Theory” it was created by Christine Miserandino For
the full theory, please visit her website here. http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
The theory is
simply a story that explains what it is like to live with a chronic illness or
disability. A person who is chronically disabled or ill only has a limited
amount of expendable energy each day. The spoon theory uses a metaphor of
spoons to turn energy into a measurable concept. A person living with chronic
illness or disability only has a certain number of spoons in their possession
each day, and every small action a person takes can result in a lost spoon.
Once a person loses a spoon, it is very hard to get that back until after a
full night’s sleep. Simple actions like getting out of bed, taking a shower,
walking, and driving can require enormous amounts of energy that people don’t
have. These chronic illnesses or disabilities can be visible or invisible. You
cannot look at a person in nature.
For me as silly
as it sounds the Spoon Theory is very true! If I have to do some vacuuming I
certainly won’t be capable to manage my hair so an updo you’ll see me in. If it’s painful when I brush my teeth and my
hand cramps up, then no eyeliner for me. If I’m running just a few errands, it is so very
exhausting for me that it can take a few days for me to recover. Little things
that we all take for granted daily have become difficult for me. I try not to
get down about having RA. I try to stay positive and be so very thankful that I
am alive and how things could always be much worse than what they are!
Every day is a
gift everyone so live it to the fullest and live in each moment! Enjoy every day that you have on this planet!
Still finding my om with RA.......................................
Peace, Love and Light to all!
*Warning this blog contains EXPLICIT language, run on sentences and other grammar errors! *
